GIST Support International (GSI) is an all-volunteer, non-profit organization that reaches out to GIST patients and their families and friends to provide education and support. GSI maintains an extensive up-to-date web site that includes clinical trial information, an expert medical opinion series, called "Ask the Professional", tips for patients and a unique interactive WIKI devoted to GIST. Our GSI members number over 1100 people from around the world who communicate and help each other with information and support through active listserves. GSI has a specific pediatric GIST section and sponsors the only Pediatric listserve (initiated in January 2007) currently on the internet. This listserve is devoted specifically to Pediatric GIST patients and their parents and/or loved ones. For the GSI link specific to pediatric GIST , please visit: http://www.gistsupport.org/pediatric-gist-carney-triad.php

For questions on GSI's pediatric section, contact: Phyllis Gay, PT, pediatric coordinator,GSI at 5alive@suddenlink.net

The mission of the Global GIST Network is to encourage and support the creation of GIST patient resources by providing a forum for patients to identify the support available in a given country or for a given language and to facilitate information exchange, mutual support and advocacy.

The Life Raft Group (LRG) is an organization that provides support, information and assistance to patients and families with a rare cancer called Gastrointestinal Stromal Tumor (GIST). The LRG achieves this by providing an online community for patients and caregivers, supporting local in-person meetings, patient education through monthly newsletters and webcasts, one-on-one patient consultations, and most importantly, managing a major research project to find the cure for GIST.